2008-11 REMCARE a research project supported by National Institute for Health Research (Technology Assessment) exploring the effectiveness and cost-effectiveness of reminiscence to family carers and people with dementia
This research project is operating in 8 centres across England and Wales and is supported by research teams at 5 universities: Bangor, UCL, Hull, Manchester and Bradford. It takes the “Remembering Yesterday, Caring Today” (RYCT) programme as its starting point and looks at the effect of this on 24 groups of 10 families.
A control group of matching size is also involved in the research for this project. This is the biggest single study of reminiscence undertaken to date. The research is still on-going and the results will be available in the last quarter of 2011.
This research project builds on the European Reminiscence Network’s reminiscence project, “Remembering Yesterday, caring Today”, for people with dementia and their family carers, piloted in 1997 and developed across Europe ever since. Image above: Working with families.
Click here for further information about the REMCARE research project [PDF document]
REMCARE photo gallery - click for larger images
Pam Schweitzer is the consultant and trainer to the REMCARE project. Please see the short film “Remembering Yesterday, Caring Today”:
“Remembering Yesterday, Caring Today”
The European Reminiscence Network is now operating a new dementia project entitled “Remembering Together: Reminiscence Training for families living with dementia” (RTRT):
2010-12 Remembering Together: Reminiscence Training for Carers of people with dementia
The current Grundtvig-funded project has 11 partners from 10 EU countries. Partners come from UK (ERN and Northern Ireland Reminiscence Network) France, Germany, Netherlands, Slovakia, Czech Republic, Spain, Poland, Finland and Ireland. The Learning Partnership is co-ordinated by Pam Schweitzer.
In each partner country, we are undertaking a series of arts-based reminiscence sessions with families living with dementia and introducing them to the value of sharing life stories and personal memories creatively in a group. Our special focus is on enabling carers to incorporate reminiscence into their home lives as well as enabling them to enjoy participating with their relatives in the reminiscence sessions. Image above/right: European Reminscence Network partners in Belfast.
Partners in this international project are meeting four times over the course of the next two years to prepare and train, to share experience of running the project in their countries and to document the work.
These meetings are in Northern Ireland, Finland, Spain and Germany. The final meeting in Germany will include an exhibition of all the creative arts work produced during the project.
Image above/left: Partners in the RTRT (Remembering Together, Reminiscence Training) project in Kotka, Finland for their second project meeting April 2011.
Comments from people with dementia in the Netherlands:
“It was fun, especially spending time in a different way with my daughter. Normally she just brings the groceries. "
"It was very special for me to do this together with my son."
And from their carers:
“I have more insight into communicating with dementia.”
“I have more understanding and patience with the situation.”
“I have less frustration, more understanding. After each meeting I called my family and told them what I learned, so they can use the information I got also.”
The “Remembering Together” project with Asian elders in London 2011Photo gallery - click for larger images
2009-10 Transitions in Later Life: a week-long Learner Workshop
This Grundtvig-funded workshop explored the experience of later life changes in the work/life balance through reminiscence and dramatic improvisation. 20 delegates from 12 EU countries came to London for a week-long residential course, led by Pam Schweitzer, supported by Ingrid Berzau and Dieter Scholz from Germany, Errollyn Bruce and Sarah Clevely from the UK.
The workshop used creative reminiscence and life review exercises to reflect on our life journeys to date, and used theatre-based exercises to envision the futures participants hoped for. Image:The Transitions workshop.
Working in small groups and as a whole group we tested these creative approaches and considered their effectiveness in enabling us to manage change at a personal, psychological and social level.
The learning explored in this workshop is still being developed and will result in an online manual conveying the essentials of the course so that it can be tried in other countries and different contexts.
Transitions photo gallery - click for larger images
Responses by participants from different EU countries:
"It’s wonderful. We’ve started by getting the feel of our past and later we are going to try and think about the future and I think we will be having some new ideas about it. The activities are so creative, I really like them – and they work really well. I will be taking some ideas from them to use in my own work."
"When I applied for this course, I thought it was more like a game, some leisure time, visiting London, meeting others from all over Europe. When I got here I found it was a chance for me to reflect on my own life. When I meet people with similar difficulties in their lives to my own, I find that mine feel less difficult. I also liked the really good organization and preparation that has been done, and the very strict structure. It keeps the group together, doing what’s been planned – which is very important."
"I really enjoyed being involved in playing a part in other people’s stories as well as having people involved in my own – being director, and using people in your story. It had something playful, but at the same time was quite a serious matter – a very good combination. Very powerful, very emotional – you really feel the stories. I like the change of methods – we changed partners 2 or 3 times by talking about different experiences. We got know other people in the group very quickly."
European Reminiscence Network in India
In 2010, the ERN director, Pam Schweitzer, undertook the first reminiscence training visit to India. Working in association with the Alzheimers Society of India (ARDSI) Pam gave training sessions, workshops, lectures and advice sessions in Delhi, Kolkata, Hyderabad and Bangalore.
The visit was to support local initiatives and advise on incorporating reminiscence into group activities in day centres and one-to-one work in the home environment. Of particular interest to participating groups was the idea of linking with the ERN projects, so some will work in parallel with our RTRT project and some will help families to develop memory boxes or life story books. When we develop our RTRT website (which will be linked to this site) we hope to feature some of the work emerging from the Indian groups.
ERN in India photo gallery - click for larger images